Wendy Mitchell: challenging stigmas on death on World Alzheimer’s Month

On World Alzheimer’s Month, we honour individuals like Wendy Mitchell, whose remarkable journey from a non-clinical NHS team leader to a dedicated dementia advocate has inspired countless people worldwide. Mitchell’s story is one of resilience, determination, and a commitment to dispelling the stigma surrounding dementia. Her journey took a poignant turn when she received a diagnosis of young-onset dementia in July 2014, at the age of 58. Appalled by the lack of awareness about the disease in her community and hospitals, Mitchell embarked on a mission to raise awareness and encourage others to understand that life persists after a diagnosis, and runs the blog “Which Me Am I Today?“

A dementia ambassador and honorary doctor

Mitchell serves as an ambassador for the Alzheimer’s Society, an organisation dedicated to supporting individuals affected by dementia and advancing research in the field. In recognition of her substantial contributions to dementia research, the University of Bradford awarded her an honorary Doctor of Health degree in 2019. Moreover, she is a research champion for Join Dementia Research, actively participating in studies aimed at improving our comprehension of the condition.

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Her advocacy extends to the written word. She is the author of several bestselling books, including “Somebody I Used to Know,” “What I Wish People Knew About Dementia,” and “One Last Thing.” In these books, Mitchell shares her personal experiences and insights into living with dementia, demystifying the condition and providing a glimpse into the challenges faced by those living with it. Her books serve as beacons of hope and understanding for individuals and families affected by dementia.

What is World Alzheimer’s Month?

World Alzheimer's Month occurs annually in September and is a global initiative orchestrated by Alzheimer's Disease International (ADI), a federation uniting Alzheimer's associations and organizations worldwide. The primary goal of this month-long campaign is to enhance awareness and challenge the stigma surrounding Alzheimer's disease and other forms of dementia.

The theme for World Alzheimer's Month 2023 is "Never too early, never too late." This theme emphasises the significance of early detection and intervention in dementia, as well as the lifelong importance of maintaining brain health.

Alzheimer's disease stands as a progressive neurological disorder and represents the leading cause of dementia. It manifests through a gradual decline in memory, cognition, and behaviour. While there is currently no cure for Alzheimer's disease, treatments are available to help slow its progression and enhance the quality of life for affected individuals.

One of the most poignant moments in Mitchell’s journey occurred when Oscar-winning actress Julianne Moore, who portrayed a character with Alzheimer’s in the film “Still Alice,” acknowledged the advocate in her Oscar speech. This recognition underscored Mitchell’s impact in raising awareness and promoting understanding of dementia on a global scale.

A conversation with Wendy Mitchell on death and dying

Mitchell is not just a dementia advocate; she is a champion of open and candid conversations about end-of-life matters. In a recent interview with How To Be Books, Mitchell stressed the importance of discussing death and dying. She recognised the fear and reluctance surrounding these topics in our society and encouraged individuals to confront these fears. She said, “We seem to fear in our country, in our culture, to talk about this uncertainty.” Mitchell’s new book aims to dismantle this fear, much like she did with dementia.

Mitchell believes that conversations about end-of-life wishes are essential for several reasons. First, they empower individuals to shape their own futures, even when they can no longer speak for themselves. Mitchell showcases the need for documents like lasting powers of attorney for health and finance, which enable individuals to make decisions about their care and assets.

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When asked why people are so afraid to talk about death, Mitchell highlighted several excuses she’s heard over the years. “Oh, if you talk about it, it’s going to happen. Oh, don’t be morbid,” she explained. She vehemently rejects these excuses, reiterating that discussing death is a gift we can give to our loved ones. By openly communicating our wishes for end-of-life care, we can spare our families the difficult task of making those decisions without guidance, and prevent disputes among family members. Mitchell has witnessed the devastating consequences of siblings falling out over differing interpretations of their parents’ wishes. By openly communicating one’s desires, individuals can spare their loved ones from unnecessary stress and conflict.

The philosophy of life by Wendy Mitchell

Mitchell’s advocacy extends beyond dementia. She encourages everyone to cherish the present and value the time they have. Her philosophy is grounded in the idea that the only certainty in life is what is happening now, as no one knows what the future holds. “The only certainty any one of us has is this moment,” she remarked. This perspective has allowed Mitchell to find joy and purpose despite her diagnosis.

Hence, Wendy Mitchell’s journey from an NHS team leader to a prominent dementia advocate and author is a testament to the power of resilience and determination. On World Alzheimer’s Month, her story serves as a reminder of the importance of raising awareness about dementia and fostering open conversations about end-of-life matters. Mitchell’s impact on dementia advocacy and end-of-life discussions is immeasurable, and her work continues to inspire and educate people worldwide.

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